Communities for the rare

Patient advocacy groups, research consortia, and caregiver networks. Each community hosts its own events, members, and conversations on RarePause.

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Periodic Paralysis Association

Founded in 1997, the PPA provides science-based information to help patients better understand and manage the periodic paralyses. We stimulate interaction between the PP community and professional disciplines, promote awareness to drive research and improved care, and maintain an open forum for patients, caregivers, doctors, and experts working toward prevention and cure.

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