Where rare communities meet.

Find conferences worth attending, communities worth joining, and people who already know what you're going through.

Upcoming events

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Our communities

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Patient Advocacy Active

Periodic Paralysis Association

Next event Test Hybrid Event · May 21
Coming soon—

Your community

Patient advocacy group · research consortium · caregiver network.

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Coming soon—

Reserved

A new community launching this summer.

Stay tuned —
Coming soon—

Reserved

A new community launching this summer.

Stay tuned —

For community leaders

Host your rare community on RarePause.

Built for patient advocacy groups, research consortia, and caregiver networks. We handle the tech — live events, member directories, scheduling, research sharing — so you can focus on the people.

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Free for people to join. Most events are open and free. Members-only content is optional.
You own your community. Your brand, your color, your members. We're the infrastructure.
Built for rare diseases. Small, tight-knit communities — not mass-market social.